BANORA Point couple Lucan and Emily Greig need to raise $20,000 to give their 11-month-old son Cooper a fighting chance of eating normally.
Cooper's feeding tube has been in place since his traumatic birth at Tweed Heads Hospital on August 13 last year.
The little trooper suffered a brain injury due to a lack of blood and oxygen during his delivery and very nearly died.
"We don't know how long he was without a heartbeat but it took nine minutes to get him going with CPR and two doses of adrenaline to save his life," Emily recalls.
Within six hours of his delivery, Cooper was rushed to Royal Brisbane Hospital where he was placed on ice for three days to try and reduce the damage and swelling on his brain.
When Lucan and Emily had a proper look at their baby son, he was suffering seizures while lying naked on ice-packs.
"He ended up with ice burns on him and he was shaking and shivering," Emily said.
Long-term they have been warned that there's the potential for Cooper to have cerebral palsy, epilepsy and visual and hearing impairment.
The fine motor skills part of his brain was damaged during his birth, causing developmental delays.
He was recently fitted with glasses because the link between his eyes and brain was also damaged.
"He's our own Harry Potter. He's very distinguished," laughs Emily
The Greigs have turned to a world-renowned expert on Cooper's condition, German-based Dr Markus Wilken.
"Our first Skype with him... within 10 seconds he had named every single one of Cooper's behaviours almost like he'd met him," Emily said.
"He's our last hope."
To bring Dr Wilken to Australia will cost $20,000.
The Greigs have so far raised $13,000 and are hosting a round of events to make up the shortfall by early September when Dr Wilken arrives in Australia.
More information at facebook.com/helpcoopereat.
How to help
Two of Cooper's upcoming fundraisers:
Punter's Day at Club Banora on July 19.
The event will be hosted by Luke Rankine. Admission $100, with half the proceeds going to the Greigs. For more details phone 0412 097 005.
Fundraising Workout for Cooper on July 26 at CrossFit Kirra, Ourimbah Rd, Tweed Heads. Admission is a minimum donation of $10.