Dying organ donation advocate Nardya Miller passes away
SHE captured hearts internationally when news of her plight to spend her last days alive promoting the importance of organ donation made headlines.
Now sadly, Brisbane woman Nardya Miller has passed away.
The 25-year-old Cystic Fibrosis sufferer was given a week to live on January 11 but passed away yesterday, one day before the two year anniversary of her double lung transplant.
A family member said Ms Miller was always in and out of hospital but was determined not to let her incurable illness rule her life.
"Not many of us know what it feels like to be told we aren't expected to live past our teenage years.
"But Nardya achieved more in her short life than many of us could dream of.
"She got her Napoleon make-up training certificate whilst being chronically ill.
"She started her own beauty business from home where she travelled to clients doing spray tans, make-up, and eyelashes.
"She started her own brand called Immaculate Makeup and Beauty which drove her to buy her own block in Ipswich to build the studio.
"Unfortunately it was never opened to the public, but was finished, as she didn't realize how sick she was."
"She renovated her home with her fiancé Liam, as it was an old shabby house.
"She also walked 10km for a Multiple Sclerosis to fight the disease as her father was diagnosed last year with it.
"It was called MS Moonlight Walk and she walked it whilst being in chronic rejection."
More than $33,000 has now been crowd-funded on Go Fund Me for Nardya's fiancé.
'Nardya will not be going home'
A DYING Brisbane woman is using her final days to promote the importance of organ donation.
Last Wednesday, 25-year-old Nardya Miller was given a week to live. On Sunday she was submitted to palliative care.
The beauty salon owner has Cystic Fibrosis (CF) and her body is rejecting a double lung transplant she had over two years ago.
Ms Miller's fiancé Liam Fitzgerald said it isn't CF that is killing her, it is the chronic rejection she was diagnosed with three months ago.
"CF was a part of her life for 23 years and got her to needing a bilateral lung transplant but after the first 11 months post surgery, being so perfect, the lungs started to fail, over and over again requiring treatments she never thought she would have to go though.
"She went through rounds of plasmapheresis to try stop donor specific antibodies but nothing worked."
Mr Fitzgerald said Ms Miller wants everyone to know how important organ donation is.
"The only way people will ever have a second chance at life is to be an organ donor."
Ms Miller's cousin Tachae Douglas-Miller said she underwent the lung transplant in 2014 because she was "sick of not being able to breathe and sick of fighting a never ending battle".
"Although we hear stories on how new lungs had changed people lives, Nardya wasn't so lucky.
"After undergoing the double lung transplant she didn't realise she was so ill."
But instead of letting her her illness get the better of her, Ms Douglas-Miller said she started up her own beauty business and bought a house with Mr Fitzgerald, adopting three "beautiful little fur babies".
"She started to make her dream of opening her own beauty store a reality [because] she didn't want to stop working as she didn't want to burden her fiancé with debt.
"Unfortunately now, Nardya is losing the battle...[she] won't be going home."
Ms Douglas-Miller and her sister Ainsley Douglas-Miller started a Go Fund Me to help keep Ms Miller's dreams of not leaving her fiancé in debt, alive.
Already more than $15,000 has been raised by over 400 people in six days, smashing the initial $10,000 target.
"We are overwhelmed by everyone's generosity. I can't thank everyone enough."
Despite only having days to live, Ms Douglas-Miller said Ms Miller is still "witty, humorous and talkative".
"Although we all know what the reality is."
If you would like to donate to Ms Miller's Go Fund Me you can do so here.
If you would like to know more about becoming an organ donor, you can do so on the Australian Government Organ and Tissue Authority website here.
WHAT IS CYSTIC FIBROSIS
According to Cystic Fibrosis Australia, CF primarily affects the lungs and digestive system.
People with CF develop an abnormal amount of excessively thick and sticky mucus within the lungs, airways and the digestive system.
From birth, a person with CF undergoes constant medical treatments and physiotherapy.
There is currently no cure.