Baby Bonnie with mum and dad Kathy and Boyd McNamara.
Baby Bonnie with mum and dad Kathy and Boyd McNamara. John Gass

Smiles for miracle baby Bonnie

WHEN baby Bonnie celebrates her first birthday on October 23, it will mark a miracle achievement that will also strengthen the unique bond she shares with her dad Boyd McNamara.

The pair, who live at Chinderah with mum Kathy, are two of just three people in Australia who suffer from a rare and often fatal-at-birth condition called Campomelic Dysplasia.

Both Bonnie and Boyd defied the odds by surviving birth. But they share many of the other typical characteristics of CD sufferers, like narrowed airwaves, short limbs, bowed legs and distinctive facial features.

Boyd, now 31, spent the first 12 months of his life in hospital, and had to be resuscitated numerous times due to his narrowed airwaves.

He is now believed to be one of the oldest surviving sufferers of the condition in the world, although he has ongoing medical problems, including having to soon undergo a hip replacement.

The family hopes that like Boyd, Bonnie will also defy predictions and learn to walk, despite her deformed legs and a curved spine.

She needs expensive treatment and equipment, including an oxygen machine and custom-made boots at $500 a pair, which help keep her legs straight.

But you would not know the challenges she faces in life from looking at her.

"She's always happy and smiling. She loves everybody; goes to everybody," said proud mum Kathy.

Grandmother Jayne Brogden is staging a Mile of Smiles for Bonnie fundraiser at Cudgen Leagues Club on Sunday, November3, to raise money for Bonnie's treatment and equipment.

Entertainment will include a jumping castle, rock 'n' roll dancers, a teddy bear competition, clown, and raffles with prizes including four bikes.

The entry fee is $10 or $20 per family. The fun day is between 10am-2pm.

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