Students band together to help raise awareness about Muscular Dystrophy
ST JAMES Primary School students have banded together to help raise awareness for Muscular Dystrophy, after one of their peers was diagnosed with the genetic disorder.
Dressing up as superheroes, the children wanted to help their classmate Brodie Blacker who was diagnosed with Muscular Dystrophy weeks after his 7th birthday in April, 2015.
Brodie's mother Gemma Blacker said she always knew there was something wrong with her youngest of four children but was relieved when she finally got the diagnosis.
"It was a relief and a burden because it turned my life upside down,” Ms Blacker said.
"He doesn't produce dystrophin so his muscles will deteriorate over time.
His heart is obviously muscle so overtime he could get scoliosis because all the muscles in his body will deteriorate.
He'll most likely be in a wheel chair full time within two years.”
Ms Blacker said it's been a tough road as a single mum trying to deal with her son's rare condition.
"I give him steroids every morning to stop him falling over because it's the only thing that will strengthen him,” she said.
"I have a choice at the moment to give him heart medication but there's no data to prove that it's effective if I give it to him now while his heart is still healthy but it has serve side effects.”
Brodie's second grade teacher Bernadette Neville the school is learning to accommodate for the 8 year old during school hours.
"In the classroom he does short bursts of activities and a lot of tasks he'll do with the iPad instead of writing because his wrists get sore,” Ms Neville said.
Ms Neville said the school is helping to educate the kids about Brodie, including having Brodie's physiotherapist talk at the school about what muscular dystrophy.