Bubbly little girl taking cystic fibrosis in stride
BUBBLY Ashlin Brazil doesn't consider having cystic fibrosis (CF) a curse.
This energetic eight-year-old takes positivity to a new level, despite suffering from a genetic lung condition with a life expectancy of 30 and no cure in sight.
Ashlin describes her medical condition as "fun", saying it gives her the chance to meet interesting people and it makes her feel special.
Wise beyond her years, she speaks eloquently about the condition that will stay with her for life, saying it makes her stand out from the crowd and that's "a good thing".
Ashlin's mum Michelle Brazil said the family found out about her illness when she was born.
"Ashlin had a blocked bowel at birth, which is a side effect of CF.
"Ashlin's diagnosis was devastating. We were told after her operation that she would be lucky to live to 30.
"It's not something you want to hear after your beautiful baby is born."
Ms Brazil said Ashlin took pancreatic enzymes every day to digest her food and maintained a high-fat, high-calorie and salt diet.
"Having a child with a chronic illness that impacts every moment of every day, well, it can be very time consuming, very alienating for some and very costly," she said.
The Brazil family is supporting Cystic Fibrosis Queensland's Great Aussie Breather campaign, launching in September, to raise awareness of Cystic Fibrosis.
The foundation is calling on employees to enter a competition to win an employer-funded day off.
"No parent should ever have to bury a child with CF but sadly this is happening every day," Ms Brazil said.
"We truly need CF to become more widely known and understood."
More information about the Great Aussie Breather is available at http://www.greataussiebreather.com.au.
- CF is a condition in which the glands that produce mucus, sweat and intestinal secretions don't function properly.