Julie McCusker has not allowed Motor Neurone Disease to prevent her from speaking to the world.
Julie McCusker has not allowed Motor Neurone Disease to prevent her from speaking to the world. John Gass

Use your feet to help Julie

JULIE McCusker is a veritable champion.

Struck by Motor Neurone Disease 18 months ago, she has not let the cruel "mongrel" as she calls it, stop her in her tracks.

"I was devastated when I was first diagnosed," she said.

"I came home and cried and cried."

She explains how her neurologist cared more about his trip to Europe than in softening the blow and explaining the disease to her.

"He was very callous," she said.

"He told me to go home and look it up on the internet."

She's not alone in her experiences.

For this reason, she has joined forces with Motor Neurone Disease Tweed-Gold Coast to organise a "Walk to D'Feet Motor Neurone Disease" walk this coming Sunday.

"Not enough support for research is happening and we need to address it," she said.

The motor neurone diseases (MND) or motor neuron diseases are a group of neurological disorders that selectively affect motor neurones, the cells that control voluntary muscle activity including speaking, walking, breathing, swallowing and general movement of the body.

They are generally progressive in nature, and can cause progressive disability and death

"They say you never know what's around the corner," Ms McCusker said.

'That is so true.

"I woke up one morning barely able to open my mouth.

"Within a month I was slurring words."

She soon lost her voice completely.

"This was hell on earth for a bird that liked to twitter like me," she said.

With the aid of modern technology, she not only 'twitters," but writes, Skypes and uses National Relay Service.

"Through these I have found my voice," she said.

If you would like to be part of the "Walk to D'Feet MND," come along on Sunday, May 20 to the Chris Cunningham Park, Tweed Heads for a 10am start.

Register at 9am for $25 (adults) or $20 (seniors) and receive a free T-shirt.

Come along and show support if you don't want to walk and enjoy the Lions' Club low cost sausage sizzle.

Register online at kymn@mndnsw.asn.au or Julie MCusker on juliemccusker@gmail.com.

Phone 1800 777 175 for more information.



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